Monday, January 30, 2012

Does my daughter have PDD NOS?

My daughter just turned 2 a week ago and my husband and I are becoming very concerned about her development. She says around 35 words, most of which only we can understand. She seems to understand most of what we say but we do have to repeat ouselves 2 or 3 times. She is also very shy and prefers to play by herself instead of with other kids at the park or at the playgroup we attend. She will sometimes burst into tears if another kid comes to close to her. Her frustration tolerance is very low and even the tiniest thing will set her off.

Other than that she is a very loving and active little girl.

Are there any other parents that have children like this? And if so, what was the outcome?Does my daughter have PDD NOS?
Our daughter was and still is behind in her speech. They don't tend to diagnose or even talk about things like PDD NOS or autism or anything like that with us - I don't think there's much value in trying to get a diagnosis this early as it's so easy to be wrong. Besides - getting the help is the most important thing and the label doesn't seem to matter for that.



Talk to your doctor first - they can refer you to the right services. Language therapy sounds like it would be a good place to start, as really all the other things you mention do sound mostly normal to me (playing by herself for example - kids don't really start co-operative play until 3 or later).



Our daughter said her first word just after 15 months. We started working with a language therapist probably around 18 months. She did have almost enough words by 2 years old, but she wasn't yet combining them into 2-word sentences. Now that she's 3, she's got a number of 2-word sentences or longer, but she's certainly not very fluent and she seems to parrot more sentences than she actually constructs herself.



Still, we continue to work with a language therapist and an occupational therapist off and on, and she's doing well. She's still behind but a lot of what we learnt from the occupational therapist has really helped us with her acting up (for example, she wasn't very good with transitioning between one activity and another - so we have an activity board so she can see what's coming next. Means a lot less fighting these days). We don't have a diagnosis, nor do I think we'll try to find one for another year or so. She's happier, well-adjusted but behind. I don't know if that means there's actually a disorder at work or she's just behind.



Not sure if that's much help. Do start with your doctor though and see what services are available to you.
I'm not a Dr, but I can answer. My now 5 yo is the exact same way, I too noticed about 15 months something was wrong. My child has a severe form of dysarthria, a motor speech disorder and ADHD contributed by her speech delay. My child would scream and act crazy when a child would come near her and she would rather be alone than around other kids, even her siblings. She would deliberately set her sights on my 4th child, pulling her down and attacking her all because # 4 would interact more and sing and talk to us.

I knew a woman w an autistic child and he would be meticulous about order and crying a lot , it is not too early for any testing, I was told this too and because I listened , my daughter lost 2 years of getting the right diagnosis and treatment.



A pediatric developmental Dr can evaluate for any disorder and make recommendations. My child's SLP picked up on my child's hearing, behavior and cognitive delays and made the recommendation to her Dr for further testing.



SLP's , at least mine at Kennedy krieger Institute do not diagnose behavioral disorders, only make a recommendation for further testing. With early intervention and the right treatment, your daughter will most likely have a better out come then my Madison. She still cries, throws tantrums and i am still waiting for a referral to developmental Dr's. I wish you luck, and I hope you get the right help and have a Dr who is willing to listen to you and send her to the places she needs to go.Does my daughter have PDD NOS?
It sounds like a possibility, but you should be aware that many children on the "spectrum" turn out normal but just maybe a little "odd." That's where most college professors come from.
I am going to be blunt here.. because you are asking a concise question and you deserve an honest answer.

Yes I think these signs may indicate PDD-NOS, but sounds more like Autism. My son has autism. My son had many of the same behaviors.. lining things up, picky about how things are arranged, and even has a hard time transitioning from one activity to another. Oh and just so you know, a lot of autism kids have sensory problems. This means that she may not feel as much as she should, or she feels things more intensely than the average person. My son didn't 'feel' as much as he should, but is so much better now. My son also didn't want to play with other kids at all either. They diagnosed my son as having autism. Since autism is a spectrum disorder, it varies in severity. She actually sounds like she's more on the less severe side which is good. Email me. I can tell you more and we can talk.Does my daughter have PDD NOS?
This really isn't a question for an internet forum. There's little we can say- and we can't diagnose, we're not doctors (most of us aren't, anyway).



If you're really, truly concerned, then seek a doctor, not us.

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