PDD-NOS/Autism and SSI Benefits in Missouri?

I recently applied for SSI for my 6 year old son who was diagnosed with PDD-NOS/Autism.



I've filled out all the paper work, submitted everything and then some and I received a phone call that my son will start getting checks, though his application has not yet been approved. They are sending this because they "presume" he will get an award letter, if they decline it, he will not have to pay the money recieved back? What exactly is this?



Has anyone been through this?

My son had all the classic symptoms of Autism in his early childhood. Thanks to doctors, we sought him extensive therapies. Communication was a big issue because he didn't start using speech until he was 4/5 and that was only using a few words. He understands EVERYTHING and can read at an almost 2nd grade level, and he's only in Kindergarten!



I just worry, my son is considered High Functioning (thanks to all the therapies and countless hours spent working with him.) His speech has improved and so has is peer to peer play. His speech is still what I consider broken. Throw him in a room of kids his age and you will probably not notice anything out of the ordinary. I credit this to early intervention. My son just recently got his diagnosis in October of 2010. He actually has a higher IQ than children his age which is why he was given a PDD-NOS diagnosis. We have done so much work, I just fear they'll look at him, talk to him momentarily and assume nothing is wrong with him. I sent in ALL the therapist names and MODD KCRO information from when he was 15 months old, but he was no diagnosed yet. Should I worry they won't take any of that into consideration?PDD-NOS/Autism and SSI Benefits in Missouri?
I do not think this is on the list of presumptive disability..what you describe does not qualify for SSI--at least its not supposed to--but getting SSI is a game and a lot of people get it who don't deserve it..people with mild physical disabilities, dyslexia, etc.

Maybe you had older info that indicated severe disability and they didn't notice his CURRENT level...if they pay attention to his current level, they will revoke the benefits...but they usually don't pay attention.


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the only time it is presumptive with autism is when there is also intellectual disability..

While he does still have a disability--that level of disability does not meet the SSI standards, but neither do SSA workers....they don't seem to have a clue.

He is eligible for supportive services such as your state division of developmental disabilities, special education and related services, and as an adult vocational rehab.

when they presume, they generally don't look at all the info..only the diagnostic label...they may have stopped when they saw an older label indicating severe delays.

SSI is for kids who WILL be significantly distinguishable from a group of non disabled peers..where people generally see things significantly out of the ordinary in activities of daily living and general ability to function....an expressive language issue is not a qualifier if there are no other severe disabilities.

the school should provide speech therapy...the developmental disabilities office may be able to provide some support--some give grants or provide special equipment--or at least some respite care so you can go out without providing a babysitter