Thursday, February 9, 2012

Could this be Rett's Syndrome?

My twin daughters are 27 months old and have been diagnosed with PDD-NOS, and I am concerned that they could have Rett's. Has anyone heard of a child being diagnosed this late? I never suspected Rett's before because their heads have always been very large and I thought the onset of the regressions for Rett's started when they were very young.Could this be Rett's Syndrome?
Hi...my daughter has Rett syndrome. She was diagnosed at 2 1/2. It is often misdiagnosed as other disorders so can be diagnosed early or take years. Regressions usually hit between 6-18 months. When did your daughter's regressions start? Do they do any repetitve hand movements? In RTT it can be seen as wringing, washing or mouthing. There are girls that have less rett x activation with less severe symptoms.
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